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0:49
YouTube
The Azrieli Foundation
Naomi Azrieli on Fragile X Syndrome
At the first Canadian Fragile X Conference, our Chair, Naomi Azrieli spoke about what must sit at the heart of research: people with Fragile X Syndrome and their families. 💜Fragile X Syndrome is the most common inherited cause of intellectual disability and autism. For too long, families have felt unheard — which is why we support ...
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"I finally got answers for everything I have been through in the last 20 years of my life", said Veena as she cried. First ten years of fertility problems which she now understood was because she is a pre mutation carrier of the FMR1 gene and next ten years of living with the diagnosis of Autism for her son which she always felt was incomplete. Knowing he has Fragile X Syndrome and that is defy underlying cause of his autism and other symptoms truly empowered them with medical treatments which q
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